Athan's Journey

eye surgery postponed

2011-04-25T18:15:00.002-04:00

Athan's fine. But Cardio says we'd better do the surgery in a hospital so he can be on a heart monitor during the procedure, and our current doc is only set up to do surgeries at a surgery center that doesn't have heart monitoring capabilities. So he's referring us to a pediatric eye doc in Ft. Worth who does surgeries in a hospital.

I'm glad we're being cautious. No complaints about taking the safest route. I'm a little frustrated that it took so many appointments before we figured out that a referral was needed. Still, everyone was very helpful at both offices in town today, and got my surgical pre-payments refunded quickly and fully.

So we'll meet the new doc soon and start the process over.

pre-op for eye surgery

2011-04-19T17:41:00.002-04:00

We went in for our pre-op appointment for Athan's up-coming eye surgery today. It should be a short, simple out-patient surgery next Wednesday, and they'll kinda loosen the muscles on the inside of both eyes to keep them from turning in.

Now the week of jumping through medi-communication loops begins. We actually already had an appointment with Cardio for this Thursday, during which we have to get them to send all of Athan's info (through the Cardio lens) to the docs at the surgery center for review. Same with Endo, plus stress dose instructions for his IV Steroids (because unlike the saintly Dr. Irene, we haven't gotten a letter yet from our new doc with instructions for surgeries and emergencies - bah!). Then the anesthesiologists convene over his compiled medical history and decide if we're ok to proceed as planned. If they decide Athan would be better served to do the surgery at the hospital instead of the surgery center, we'll have to reschedule.

Barring any red flags, one more surgery for kiddo a week from tomorrow.

some other stuff we do

2011-04-08T11:24:00.004-04:00

Blue pants because it's too hot already (yes, we will get him a haircut soon):

Ryan lays sod in the backyard:
Morgan dresses up for 50s Day at school:
And Western Day:
And we hang out with Grammy and Baby Mae:

Vacation

2011-04-08T10:59:00.004-04:00

Planes (Dallas to St. Louis to Chicago to D.C, then D.C to Denver to OKC to Dallas):
Trains (into Baltimore and back with the Crisps to visit the science Center):

And automobiles (lots of driving, too. Trip to train station pictured here):

It was really good to see our friends the Crisps! What a great way to vacation! The Wilmore Diaspora better watch out - the Strebecks like planning vacations to intrude on old friends. :) I think the kids had fun:

i know, i know

2011-03-07T11:04:00.003-05:00

I haven't been writing. I'm sorry. Among other things, my brain has been swimming with the info in the video below. Meanwhile, the Good Ship Strebeck is sailing along nicely. Specifics soon. (Thanks to Cindy and JD for the link to this vid.)

All better now...

2011-01-18T14:54:00.001-05:00

Athan recovered from the procedure 2 weeks ago just fine. He probably took the whole thing better than I did! :) I was sickly for a couple days after his ordeal was all over.

Then we went to Clovis for a belated Christmas gathering, and Morgan got sick (as in puking lots and eating almost nothing for a couple days). Then we came home from Clovis, and Athan got sick (also puking, had to give IM shot of cortef).

But we're all better now. Whew!

Pre op going well. More updates on facebook.

2011-01-07T08:41:00.000-05:00

Well lthis is new...

2011-01-06T16:40:00.002-05:00

Athan has his dental work done tomorrow. Just a few fillings, but it has to be done at the hospital to monitor heart and endo stuff.

This has been a new experience for us. In Kentucky, all of his procedures, whatever the specialty, were done either at UK or down the road at Central Baptist. Most of his docs knew each other, and all of his records were in the same computer system. Getting instructions for Athans care before, during, and after surgery seemed pretty easy.

Not this time. The dentist is a local independent practitioner, the pediatrician is part of a local practice, and the local Hospital is host for the day surgery. Meanwhile, Athan needs input from Cardio and Endo which are through Cook's Children's in Ft. Worth. Every doc and nurse and staff member is overbooked and overworked, it seems. We can't get calls (or faxes or e-mails or sing-o-grams) from specialists for pre- and post-op care, and we can't STOP getting calls from people who want the money first and NOW.

Ugh. I think most of the wrinkles have been ironed out, hurdles jumped over, and hoops jumped through. Tomorrow we will head up there at 7, have surgery at 8:30, and hope to be home by noon or 1.

Christmas Singing

2010-12-29T12:59:00.000-05:00

Athan sings O Come, O Come Emmanuel from Ryan Strebeck on Vimeo.

EW Christmas Concert from Ryan Strebeck on Vimeo.

Athan wins again

2010-12-16T15:26:00.002-05:00

Ok, parents. I need help. Again. The picture you see above is the result of "you may not get down until you've taken at least one bite." I lost. After I snapped this pic, I gathered him up and put him down for his nap. In case you can't hear it from there, he's already snoring. Surprisingly, this isn't so much about eating or not eating his food. He's a good eater when he's not already dug his heels in about it. It goes like this:

Here's the problem we face with Athan at least three times a day right now. It starts quite amicably: we give him a choice to make. Today it was "eat lunch" or "rest." Sometimes when he comes home from school, he's not hungry yet if they've just had snack. He gets sleepy before he gets hungry. Usually I just try to decide which is right for him, and act on my decision. Today I couldn't tell, so I gave him a choice. Per usual when given an either-or question, he announced his decision. "Rest."

So we head for the bedroom. No problem. He goes down for a nap most days sans protest. Normal. Except half way there, he changes his mind. "No I want to eat wunch first, Mama." Ok.

So we head back down the hall toward the table, where lunch is sitting ready for him to eat. "Actually, I want to rest first." Ok.

Back down the hall. "No lunch first." Ok. Back down the hall. "No rest first." Ok. Back down the hall... I calmly let him walk out his indecision for a few minutes until the tears come. He starts to shout at me each time he changes his mind "NO MOM I SAID REST FIRST!" even though I'm not arguing with him or impeding him in anyway from doing which ever he chooses.

Then I try to intervene, not because I'm in a hurry to get him to bed or to the table, but because it seems the only way to rescue him from the cycle of indecision he can't break alone. Of course, it's going to go badly from here because no matter what I do, it's the wrong choice. But now I've made a stand of some kind, and I can't let him just scream his way out of it. Thus "you have to take at least one bite before you get down" (the One Bite Rule is long-standing at our house, so that's not a surprise to him). So he cries into his pile of apples, ignores his quesadillas, refuses consolation, and falls asleep at the table (in this instance).

It happens almost any time we try to offer him a choice, and this is where I'm stuck. I don't know how to help him. I've tried letting him come to the end of indecision himself, and he just starts crying and gets angry. I try to intervene and decide for him, and he screams. I try to avoid giving him any choices at all, which might be why we're still in this pattern after so long, or it might be the right thing to do... AAAAHHH! I'm stuck.

Morgan never did this. It was enough to just say "you can't have both" or "you may decide or I will help and decide for you." She was ridiculously rational. Athan is not.

Any advice? Is he just too young to do what I'm asking him to do? How do I help him enjoy the freedom that comes with a choice instead of feeling trapped by them, to teach him how to choose? We're going on well over a year of this same pattern here, so any change would probably be a good one. :)

6

2010-12-16T14:29:00.005-05:00

Morgan is 6 years old! During her "birthday weekend," she got to sing for the church twice, make a gingerbread house with Nana and Papa, and have a birthday party. We had a few friends over for cake after dinner on the actual day. There were guests from 6 months to 86(ish) years old, and Morgan, of course, seemed equally comfortable and happy with each extreme and everyone in between. We're thankful to the friends and fam who came (some on quite short notice) to celebrate Morgan with us. She's pretty excited about being 6!

I finally gave in. I've said for 5 years now that I wasn't going to spend alot of time on a crazy kid birthday cake for one too young to really care. But Morgan's six now, and she cares. :) So I called my mom-in-law for tips from a pro, and set out to make Morgan a Castle Cake for her birthday (pink, girly, princess-y castle, of course). I watched this video, then modified it a little. The pink sprinkles kinda help cover the fact that I really stink at icing a cake. :)

Might have been a little better if I'd done strawberry cake, but Morgan's only request was for chocolate. :) Here's a clip of her reaction to the cake, and the birthday song:

Bummer

2010-12-09T22:25:00.002-05:00

I'd put it off for months, but I finally made the kids both an appointment to see a dentist.

Morgan's fine.

Athan has cavities. Several. Probably somewhat due to genetics. I also wonder if the "drool pool" that stays in his mouth because of his low tone has contributed. Whatever the reason, he has to have some fillings. It'll be done up at the hospital here in Abilene on January 7th. We'll have to arrange for all of his Endo stress dosing ahead of time.

Yucky.

dress up

2010-12-03T23:22:00.000-05:00

Morgan The Star

2010-11-15T20:32:00.002-05:00

Morgan was chosen as the Austin All-Star for Mrs. G's class for the 2nd six weeks. She gets to go to lunch tomorrow with all the All-Stars at Mr. Gatti's.

AND I got a note in her backpack today informing that Mrs. G's substitute earlier in the week said Morgan was "very helpful" to her.

Way to go Morgan! :)

potty training!

2010-11-15T20:25:00.003-05:00

We've been steadily working with Athan to go on the potty. We're not there yet, but today we had a big milestone: Athan wore the same underwear and pants from morning to bath. No accidents! We still have to take him to the potty every once in a while just to make sure, but we didn't change clothes or use a single diaper or pull-up today. Woo-Hoo! He wears a pull-up from bath to bedtime (which is dry so far), and then a diaper at night.

Way to go Athan Bear!!

a happier snippit

2010-11-04T21:21:00.002-04:00

Tonight the kids and I spent an hour just chillin in the back yard. Athan decided to be "Athan Bot," inspired by a Sesame Street skit. He spoke in only two pitches, with halting syllables, called me Mama Wobot, and ended every sentence with "beep, beep." Apparently, Athan Bot's primary function is to retrieve pecans one by one from Mama Wobot and take them to the yellow bucket.

Meanwhile, Morgan found a Magic Stick, which had many functions. It could distinguish between good and bad pecans, it could locate smallish Magic Twigs that were saved in a pile for later use - namely turning oneself into Tinker Bell, and it rediscovered various Lost Treasures which were collected in a bucket.

It was a good evening. :)

i missed it.

2010-11-03T14:04:00.003-04:00

There was a Window into my daughter's soul this morning, and I missed it.

It was a frustrating morning. We woke up a little late, and many of you already know that trying to rush a groggy 5-year-old through a morning routine doesn't really work. She lingered too long over breakfast, complained about her clothes and shoes (bringing long pauses before each item was finally on her body), and then whined through most of the brush-n-fix-the-hair process.

As I twisted the rubber band around her ponytail, she tearfully reported this to me: "Mom, I'm just sad because my friend M_____ at school always fixes her hair prettier than mine."

I was frustrated and we were in a hurry, so I threw some empty words of pseudo-encouragement at her, ignored her tears entirely (assuming them to be just an extension of our grumpy morning), and hustled her down the hall to grab the jacket and backpack and run to the car....

Then later, when the house was quiet and I faced 7 long hours before I could see my Morgan again, I cried a little. Partly for my morning fumble (which will require me to apologize to my daughter later today). But mostly, the tears came for the fact that it has already started for Morgan. This silly thing that women do - petty competition with one another to be the prettiest one - has started at age 5. Sans intervention, it won't stop for a long time, if ever.

So I prayed. I confessed. I asked the Lord if there's a better path through this for Morgan than I can see, and if there is, would He please point us both toward it?

And now I'm asking you, our community, to help me, too. Help Morgan know what real beauty is, and how to pursue it. Demonstrate celebration of the beauty of others WITHOUT putting yourself down in the process. And pray with me for the Holy Spirit to tell her these truths in ways none of us can.

It takes a village, right? :)

WT rehab

2010-10-27T16:00:00.002-04:00

We finally got in for our evaluation by the wonderful folks up at West Texas Rehab. Athan charmed everyone in the room, of course. :) And, as expected, they confirmed yet again that Athan demonstrates developmental delay in large and small motor skills. That's it. Every other area shows him age-appropriate or ahead.

Also, WT Rehab contracts with the schools to do therapy, so Athan sees some of the same folks at school as he will at "the gym" (as Athan prefers to call it). The PT - Jody - is good with just doing sessions at school and evaluating later to see if we need to add some sessions, depending on his progress in the next few months. OT we decided to add one half-hour session every other week on top of what he gets at school.

Jody also referred us over to ortho to get Athan fitted for some new ankle braces. He did NOT like the casting process they did to get a mold of his ankle. They'll call in a few weeks when they're ready and we'll go in for a fitting.

So far, the report from the therapists is that Athan is a joy to work with. We're so proud of his determination and hard work! :)

Cardio

2010-10-20T08:46:00.002-04:00

Ryan took Athan to Mansfield (near Ft. Worth) yesterday to see our new Cardiologist, Dr. Hackman. She was really good, Ryan says. I think we'll keep making the drive down there to make sure we can see her (instead of going to the clinic here in Abilene where the practice sends different docs from time to time).

Athan's ECHO looked good, and his heart is not enlarging anywhere at a rate that is higher than his normal growth rate. In case you don't remember, he has small leaks in his mitral valve that could cause his heart to enlarge. We have known since just a few days after his first heart surgery (in April 08) that he will need another surgery someday to repair the mitral regurg. Dr. K (cardio in Kentucky) recommended waiting as long as possible to do the repair. Dr. Hackman, however, said that if it was her kid, she would want it done sooner rather than later (as in maybe when he's 5 instead of when he's 10 - ish). So she plans to watch his ECHO (the EKG was a dismal failure - Athan was too wiggly and loud to get any results), and to take Athan's case to her colleagues for more opinions. We'll see her again in six months.

Endo

2010-10-18T17:10:00.002-04:00

Athan saw the endocrinologist today. This makes our second visit since the move to Dr. Paul Thornton. He works with Cook's Children's Hospital in Ft. Worth, but they have a clinic here in Abilene that's really just down the street from us.

The first appointment didn't go well for me. Maybe Dr. T was having a bad day and maybe I was, but it was stressful. Plus, who could fill the shoes of the fabulous Dr. Irene?! But today went better. He was nicer. Or I was. Or something.

And Athan is maintaining well as far as his Endo stuff goes. His IGF-I was low on his last labs, which means we go up a bit on his growth hormone dose. Otherwise, all stays the same and we go back to see them in 3 months.

Athan and Ryan just left to drive to Mansfield to see Cardio tomorrow. We won't usually have to make this drive, but this time we just took the quickest appointment we could so he could see a cardiologist. The referral process took quite a while, and I'm anxious to make sure his meds are correct about his heart stuff. After this first one, we can schedule follow-ups here in Abilene, just like Endo.

I'll try to post an update when I hear from Ryan tomorrow.

the stuff

2010-10-09T09:36:00.002-04:00

I've spent much of my creative energies the past few months on 3 things:

1. Helping our kids navigate transition in a healthy way.
2. Entering the life of the congregation at EWUMC in a healthy way.
3. Unpacking and organizing our stuff.

1 and 2 went well, I think, and seem like meaningful pursuits. 3 is... necessary. And in the long run, I know I'll be glad I'm doing some of this work on the front end. But I'm re-heeeeealy ready to stop fiddling with all of our stuff!

Last Saturday was a notable milestone: I unpacked the last box. Woo-hoo! Now all of our stuff from storage (that's been there for the whole 4 years we were in Kentucky), plus all we brought with us in the truck, is "settled in." I know what we have, where it is, and why it's there. Piles of things have been donated. Other piles trashed. Some boxed and stored, and the rest organized. Whew.

Now my gracious friend Missy is helping me decorate (on a tiny budget).

All of this is exhausting and feels kinda shallow sometimes. But I want my home to be a warm, welcoming place. For my kids. Our guests. Myself.

That is the last few months of my life, at a glance...

Ahtan can climb stairs!

2010-10-07T14:10:00.001-04:00

So so proud of him! These are the 3 little steps he does each day at school...

school - Morgan

2010-10-05T14:14:00.004-04:00

I suppose it won't surprise anyone that she's having a great time. :) She loves Mrs. G and seems to be happy to see all of her classmates every day.

One of her favorite things is Wellness Wednesday. Each Wednesday during PE, the kids run laps and get rewards throughout the year for meeting goals and making various milestones. Morgan is loving it. A couple of the parent volunteers have informed me that she cheers herself on as she comes by to mark her card after each lap... :)

It has been a bit difficult for her and for us to adjust to a full day of school. Can I just say that full-day Kindergarten is a bad idea?! It's a bad idea. She gets so very tired. I know she'll grow into it and her stamina will be fine eventually. Probably soon. But I still think it's silly to make 5 year old kids have an 7 hour school day.

But fatigue aside, all is going will with Morgan and her Kindergarten adventures.

school - Athan

2010-10-03T23:43:00.002-04:00

Athan LOVES his school. Every day he greets us with a wildly excited "I had so much fun at my school!" It's so good to see him that excited...

So school: Athan qualifies for preschool through the public schools at age 3 because of his developmental delay (all motor delay). So he admitted through the special ed program, and is part of a classroom that is designed for kids with special needs. Abilene ISD is GREAT in that they practice "reverse integration" with their special ed classes. They have allowed any teachers in the school to put their 3-year-old in the program as well. So Athan is in a class of 12 or so (with about 3 or 4 adults in there), and I'd guess about half are "normal" (kids with no special needs or learning delay), and about a quarter of them are kids like Athan (some delay in motor or speech, but not greatly delayed), and then a few kids with many special needs and more pronounced developmental delay.

Athan began the year going 2 hours each morning, from 8 to 10. We just had an ARD meeting and they recommended a longer day. They thought he was ready for a 4 hour day. And maybe he is. But I'm not! I like my kid, and our time together is short enough. However, with the addition of some therapies and such, I didn't want him to miss ALL the class activities. So we've decided a 3 hour day is good for him. He will go each day from 8a to 11a.

The main reason we are choosing school for him right now is for therapies. [Laurie and Emily - you'll love this - same schedule as we had with you guys!]: He'll get PT twice a week, and OT once a week. We're excited to get feedback from the therapists on his progress once they get rolling (this week, I believe).

And, of course, his teachers L O V E Athan. Love him. I think they recommended a 4 hour day just to have him around longer. :) It does my Mama's heart good to hear what they say about him.

as promised... :)

2010-10-01T15:19:00.004-04:00

Aaaaaaaaaaaaaand we're back. ;)

Of course today, the day I thought would be wide open space for reflection and organized blog updates, has gone a little differently than planned. Of course. So no organized summaries yet, or even loads of pictures with cute captions and cuter stories. Yet.

For now, 2 things:
1. We have been in "project mode" for the past few months (busy with the projects that come with new place and new season), and I'm really ready to leave "project mode." Thus the return to blogging. It feels regular and rhythmic. I miss those kinds of things.

2. Just random cuteness:

re-launch

2010-09-29T22:22:00.002-04:00

I, Amberly R. Strebeck, to hereby promise to blog again. I will relaunch Athan's Journey on October 1, 2010, and I will faithfully update my few remaining and forgiving readers on the happenings of Strebeckian life in Abilene. If our patient followers will wait only a few more hours, posting will resume, I swear.

:)

1st day of school

2010-08-24T09:55:00.003-04:00

Ok, it's official. Yesterday was Morgan's first day of Kindergarten, and today Athan started preschool. Morgan's is a full day thing (8-3), and Athan goes for 2 hours each morning. More details to follow, I'm sure. But for now, that's all I can manage. It's a bittersweet day for me. I'm gonna go distract myself for 45 more minutes, then pick up Ryan and go with him to get Athan!

no puking, still fever, still home

2010-08-16T10:17:00.002-04:00

He hasn't thrown up any more since about 9 last night. He still has a mild fever, but he's eating a bit and has kept his meds down. If the banana he's eating sits well with him, we'll give some Tylenol in a bit for the aches and the fever.

Doing better but not out of the woods yet. Thanks for praying! We slept in shifts around here, so today might be a long one for all of us... :)

still at home, still sick

2010-08-15T22:53:00.002-04:00

We thought we were in the clear. He slept alot, sugars stayed high (88 was lowest), and then acted like he felt better and ate a little finally.

Then he threw up all over Grammy and the couch (again). So he's back in the tub, we're running the 25th load of laundry, and Grammy took her 3rd shower of the day.

On the bright side, he still acts like he feels better. He's talking and playing a little...

Ok - mid-post correction: Just checked his sugar. 70. Not dangerous yet, but it needs to go up.

1st time sick in Abilene

2010-08-15T15:25:00.002-04:00

Athan's been awake most of last night and today. He's been throwing up since about 9a. So far his sugars are fine (nothing below 90), but if he can't keep something down soon, including and especially his Cortef, we'll have to give his emergency shot. If that doesn't work, we'll have to go to the hospital.

We could use your prayers once again.

yes, better

2010-08-10T22:42:00.002-04:00

And thank you all. I appreciate the encouragement. Alot.

Today was better. I'm still sifting through all the stuff, but I took a big break from cerebral work today and cleaned up in our backyard for 7 hours today. I'm physically worn out, but less stressed.

And I'm a bit embarrassed for whining. I should never blog when I'm sleepy - it comes out pitiful.

So.... tomorrow I register Morgan for Kindergarten. Wow!

overwhelmed

2010-08-09T23:13:00.002-04:00

Today I am overwhelmed. (It looks like a small, benign sentence).

I've fallen off posting for a while, and I'm sorry 'bout that. I'll soon return to the regularly scheduled cute-kid stories and pictures and videos.

But today, I have to post a little of Athan's Journey. Or maybe Athan's Mama's Journey. ;)

Endo. Cardio. Optho. Ortho. Genetics. PT. OT. School. Pediatrician.... It's alot to coordinate. Everybody has to learn the Story of Athan. So I've been combing records, sorting, filing, copying, organizing, reading...

And crying. It's hard reading - Athan's medical history. I kept up, during the last 3 years, whatever information we needed to know to care for Athan THAT day. Until the last couple of days. I'm trying to learn the comprehensive whole of his story, so I can tell it (and document it) correctly for the new folks who'll be providing care. There is no short version. There is no easy telling. I have alot to learn...

So coordinating the appointments could be a full time job - schedules and records and paperwork and insurance and such. I feel like I should go to med school to understand Athan's story, but even if I just try to decipher the pile of papers from Central Records at UK, I'll spend some hours there. Meanwhile, we just moved in. Nothing feels like it's where it should be yet. And my kids still get hungry and lonely and bored and tired. The damn dog keeps pooping and not cleaning up after himself....

I told Ryan today: "It really is all stuff I WANT to do (maybe except cleaning up dog poop), but today I'm overwhelmed by how much of it needs to be done yesterday."

So that's Athan's journey today - Mom's overwhelmed...

Clovis, Kerrville, and next is Lubbock/Ceta

2010-07-25T22:46:00.003-04:00

We've traveled quite a bit lately. We knew it was coming: move to Abilene, then survive July. Sanity should come some time after August 1.

We took a quick trip to Clovis to grab some stuff we had in storage during our student-living in Kentucky last weekend.

This weekend we went down near Kerrville for a family reunion. Athan and I mostly got tired: But Morgan had SO much fun. I'm hoping Papa Sid will let me upload the footage of her paddling around a little creek in a kayak all by herself (and doing a pretty good job of it!). There was good food and great company for us all. Then Ryan, Athan, and I drove back, while Morgan stayed and is going with Nana and Papa to Sea World in San Antonio. She called tonight with giddy reports of trained whales and such. So happy for girl! :)

Next weekend is the last of the crazy Strebeck month. Ryan and I get to be a part of Anna and Benji's wedding. Anna was in the church at Shallowater when Ryan and I were serving there, so it's a long-lived and treasured friendship. If you guys could shore us up in prayer this weekend so we can serve and love them well despite our current fatigue, that'd be great! :)

I'm going to stop typing before I throw in another emoticon...

we're... living on.... :)

2010-07-25T22:41:00.002-04:00

Life is always a good mix of the difficult and the easy, the good, the bad, and the poopy diapers. Transition, it seems, just magnifies both the highs and the lows.

Athan was in time-out twice before breakfast, and he and I had to miss Sunday School AND be late for church because I had so much resistance from him at every step. Ugh.

Then, this afternoon, he voluntarily (and unprompted) sat on the potty and did his biz-ness, and got to wear Thomas The Train underwear for an hour as a reward.

Major meltdowns followed by major milestones. Intense ups and downs.

I'm tired and smiley and teary and....

help is on the way! :)

2010-07-14T20:06:00.002-04:00

Nana and Avery are coming to visit. New faces for my kids to entertain.... ;)

transition

2010-07-13T22:48:00.002-04:00

We're here, but not here yet. Make sense?

The process of find Home again is going well. It is. But it is still very much a process, and one that will be on-going for a while.

I think it's all kinda finally hitting the kids. They've weathered so much the past few weeks, most of it with grins and giggles. But Sunday Morgan had a fever, and they've both been extra volatile the past couple of days. Morgan is very expressive, and can over-react to life on a fairly normal day. So you can imagine the heights and depths of her days when she's tired and overwhelmed.

Athan is a bit disoriented, too. He wakes up crying at night, instead of happy. And he keeps asking me if we can go home (while we're at the house, mind you). More than a few times today he announced to me that he was "going to Ms. Eve's house" and requested that I open the front door for him (Ms. Eve lives in Wilmore, of course).

So this is part of it. Transition. We're smack in the middle of transition.

And still, we've been given so much. The folks at Elmwood West are being very patient in letting us settle in and get to know them. And I think the Lord just knows when I need a familiar face or voice or name in my e-mail inbox, too. Just when I need a friend, someone calls. Really - like 8 times in the last 2 days alone. I can do well through days when my kids are cranky and clingy when those calls and comments and cards and e-mails keep coming... :)

fast version

2010-07-06T21:52:00.002-04:00

we made it to Abilene, unloaded the trailer, and unpacked like crazy for a day or two. we've seen familiar faces, met a sea of new ones, and unpacked more. Ryan's first sermon was really good, and Elmwood West UMC DEFINITELY knows how to welcome a new pastor and his family! morgan is charming everyone she meets, Athan is walking and talking more and more each day, Ryan has jumped off into the deep end of vocational ministry, and I'm trying to make sure we all have some clean underwear for tomorrow. :) today, i miss Wilmore in the form of an almost physical ache. i'm sure it won't be the last day i feel that way.

when we get internet at the house, i'll slow down and do a better update. :)

as always, THANKS to you who are praying us through this transition!

the big Texas sky... :)

2010-06-29T23:00:00.002-04:00

Even in the hills and trees of north Texas, sunsets are prettier here.

(We made it to Nocona)

going off grid some time today...

2010-06-25T07:39:00.002-04:00

Today we finish packing. Tomorrow we load the trailer. Sunday we clean. Monday we drive. Tuesday we drive more. Wednesday we move in. Thursday Ryan starts his new job and I start unpacking. Friday is Athan's first appointment with our new Endocrinologist. Saturday we either rest or panic or cry or unpack. Sunday Ryan preaches his first sermon. Monday... I don't know.

I'd be really thankful if you chose to use that little paragraph as your prayer guide for the next 10 days or so... :) I'm sure I'll be sneaking away with Ryan's lap top in search of wifi at some point, so I'll try for a short update when I can.

made it. :)

2010-06-16T06:32:00.001-04:00

Home again, resting and rotating laundry. Packing begins again in earnest today, as do the goodbyes. Gulp...

soooo.....

2010-06-14T03:34:00.002-04:00

After a new lock installed, some brake repair, lights fixed, and something to do with ball bearings... we left Lubbock 4 hours after our planned time of departure. We're in OKC at 2 a.m. waiting on Ryan to get back from Wal-Mart with diapers (apparently, the stash I'm sure I packed in the diaper bag earlier today has evaporated). If you think about it, you might pray us home tomorrow. Could be a long day... :)

in case you're wondering...

2010-06-13T13:29:00.003-04:00

we haven't left yet. I'm not exactly sure why, but last time I walked out there, Sid and Ryan were rifling through Layne's garage in search of tools, and I heard Ryan ask "Where is your circular saw?" I guess we're not leaving RIGHT now...

we've been in West Texas for sure!

2010-06-13T11:06:00.002-04:00

The wind blows here. :) My hair looks like this pretty much daily. In Kentucky, this only happens about twice a year or so. Oh, it's good to be back... kinda. :)

So it's been an eventful week spent visiting lots of wonderful friends and family, having some great "chill time" before the big move. MANY thanks to Selena, Layne, Jon, Landon, Conner, and Rob (who surrendered his room) for hosting us with much generosity and grace.

Ryan's been buzzing around at annual conference, so he was a bit more busy than the rest of us. And last night, he was commissioned for ministry (ordination to follow in 2 years). More on that later...

For now, we're loading the truck, hooking up the trailer, and preparing to leave the Windy State and make the drive from the panhandle to Wilmore ONE more time. I'm starting to get teary, but I'm guessing the sentimentality wears off by OKC...

in ONE day...

2010-06-10T14:49:00.003-04:00

17 hours, from our driveway in Wilmore to Mee-maw's house in Nocona, all in ONE day. My kids were AMAZING. We were in Ryan's pick-up, so they spent 14+ of those hours in the back seat of a super cab Chevy truck. Yipes.
Truly I am in awe of how well they did. I kept a few Mommy-tricks up my sleeve, saving them for the inevitable melt-downs and misery of the last few hours. Never needed them. We did finally have to stop for a late dinner because I got cranky, but the kids were chipper right up to 11pm when we stopped for the night at my grandmother's house. WAY TO GO MUNCHKINS! :)

Athan mostly kept himself distracted with books, and making up conversations between his stuffed animals that we brought along for company. We listened to some great free podcasts Ryan got for them - readings of classic kid stories, like Beatrix Potter tales and such.

Morgan the Methodical, however, showed off her skills. She made up a game. The rules probably only make sense if you're five (or if you were there to watch the various evolutions of this game, perhaps). Mostly it involved Morgan assigning to one person a number and a color. Their "turn" consisted in finding exactly the assigned number of objects that were the assigned color. Then she would somehow record our results on a grid she had drawn out. She would color in squares for "right" answers, and draw the "no" sign (as in the circle-n-slash you'd see for "no smoking") through squares for the "wrong" answers. I'm still not clear on what exactly what "right" or "wrong" (though I do remember Ryan got one "no" sign for doing something that "in this game only girls can do"), nor do I know whether or not the game had any way to be won or lost or even finished. But it was great. Systematic, organized, layered, and consistent over the course of several hours, off and on.

So now we turn around and head home in a few days. Who knows what they'll entertain us with on the way home? :)

told you so!

2010-06-08T21:40:00.002-04:00

This morning, in front of Daybreak on 82nd street in Lubbock...

I just had my phone with me to catch a glimpse, and it's not a great video phone. It only lets me catch 30 seconds or so at a time. So you'll just have to trust me when I say that this video only shows about a third of the distance he walked with no falls.

a Kindergartner now!

2010-06-04T12:53:00.007-04:00

Waiting on the bus on the last day of preschool!

Morgan finished up preschool with a flurry of fun stuff! Tuesday they got to wear swimsuits to school and play in the water all day. Wednesday she celebrated all the summer birthdays with her class. And Thursday (last day) was an ice cream party and award presentation (as you can see in the video below, Morgan got the award for "Most Enthusiastic"). Can't believe my girl will start Kindergarten in the fall! :)

Athan's turns 3 ("No Mama, I just only 2!")

2010-06-03T13:35:00.002-04:00

Ok, so Athan did, in fact, have a birthday, and he is now 3 years old. But don't try to convince him of that! So far, he has insisted on either remaining 2, or skipping over 3 and being 4 right now. Either way, according to His Stubborness, he is NOT 3.... (I'd say that's a perfectly reasonable way to begin being a 3-year-old). :)

And whereas my Morgan can't get enough of the spotlight, Athan is showing some hesitance to be the center of attention. But he recovered quickly, and had a great time at the party...

Athan's birthday is always such a swirling mix of emotions for me, and it gets stronger every year. We've tried to keep birthday parties kinda low-key. I will NOT enter the "I Had the Coolest Little Kid Party" contest. Not for the birthdays they won't even remember, anyway. :0) With Athan, I feel like either having a celebration that rivals the pomp and circumstance of Ryan's recent seminary graduation, or a visiting dignitary. Nothing less seems like celebration enough for the gift of Athan's life. At the same time, I just want to skip parties altogether and just be quiet and cuddle with my Athan Bear, in hushed awe of him and the God that gives him back to us over and over again...

So, fighting both my extreme urges, we had some cupcakes and some good friends, and it was perfect...

(still working to catch a good video of Walking Bear... soon...)

the PARTY and a giant THANK YOU

2010-06-02T21:33:00.002-04:00

We had a party for Ryan the night before graduation (so as not to conflict with the other 15 parties happening after graduation), and it was so much fun! We had stellar smoke BBQ (THANKS JAKE) and lots of other yummy extras to go with it. HUGE THANKS to our moms and Ryan's Grandma Hale for spending an entire day chopping and cooking and arranging and cleaning and being very, very patient with me. We couldn't have asked for a better evening to just eat good food and be with the people who have loved us so well in Wilmore.

We missed those of you who couldn't make it, and we're so thankful to those who did.

Of some things Ryan-related

2010-06-02T08:29:00.012-04:00

Ok, I'm just going to brag on my wonderful husband for a bit. If you're not in the mood for gushing accolade, scan the pictures and skip the words. There - you've been warned...

This accounting is chronologically backwards, but I think in order of import, from least to greatest:

Ok, first, to the predictable part of graduations: academics. I have to say that I respect Asbury Seminary very much for the way they handled graduation events. Seminary is not just another academic endeavor. At its best, it is about spiritual formation in an academic setting. With that as the primary aim, academic awards could be dangerous incentives for students to have bad priorities - and to skip some necessary forming experiences trying to shortcut to a good grade. There is NO mention of a "valedictorian" or any other kind of class rank during graduation. It's wonderful. I like Asbury very much for such deep respect of credible academics, without worshiping academic achievement.

That said, my husband did REALLY well, academically, in seminary. I won't be too specific, because Ryan wouldn't want it. But let's just say I know people who work at Asbury... He did VERY well. This is probably no surprise to anyone but him. Ryan is a thoughtful person, and has gotten as good with words as he is with other tools, like radial arm saws and tile cutters. He took a full load every semester, and did the work each prof asked of him. I know, I know - it's not about good grades. He had every excuse, from sickly pregnant wife at first to toddler that sickly pregnant wife couldn't care for very well. Then Athan's birth and sleeplessness and hospital stays... He could have excused himself from learning. I'm really proud of him for doing the work, and for learning, especially, to be a life-long learner.
The rest of our seminary experience, as anyone reading this probably knows, has been events surrounding Athan's birth and health complications. Ryan was asked to share that story during Graduates Chapel, the morning of graduation. He spoke beautifully of the way this community has kept us afloat during such trauma and grief, and has celebrated with us things like successful heart surgery and first steps at age 2.5. He did an amazing job of showing how God's grace to us through Asbury community has been thick and constant from then to now. I know Papa Sid got it on video. When I get hold of that footage (and if Ryan'll let me) I'll try to post it for you.Before graduation, during the last week of classes, Ryan did win an award, though not for academic accomplishment. This award is called the Towel and Basin Award, and the prompt for nominations read like this:

"If you know a graduating student who has: 1.Demonstrated promise in leadership and
2. Demonstrated a servant attitude in their lifestyle and activities, then nominate them for the Towel and Basin Award. The Towel and Basin Award is an award presented by the Alumni Department to a graduating student (one from both Kentucky and Florida campuses) who has a heart to serve the people around them."

The nominations came from several of our friends, independently of one another, and they said the most wonderful things about my Ryan. They spoke of his generosity in time and service - helping fix things or lending the truck or whatever, of his pastoral heart toward friends and their families, of his strength, of his dedication to his family, his willingness to serve even in the midst of crises with Athan and taking full course load. And my favorite quote: "He could whoop a man, most any man, but he would rather do the hard work of forgiving him instead." :)

This is the point, isn't it? Not getting A's in theology class, but being formed into a Servant. If I haven't said it clearly yet, let me add my voice to the others who say that you deserved this award, Ryan. It points to the life you want to live, and didn't wait until after graduation to start living it...

Still, I know my husband. He'll be embarrassed by this post, and maybe a little annoyed that I posted a picture of his award. But even HE would agree that his greatest moments during seminary looked like this:
More times than not, his "study time" became "story time." He wrote papers while listening to thought provoking songs like "It's a No-No to Kiss A Rhino." He figured out a way to think theologically about the world while he was being a loving husband and father, not instead of being a loving husband and father. For this, I am most humbly thankful and so very, very proud.

Love you, Ryan.

general Athan health update

2010-05-30T12:18:00.003-04:00

When I got back from Texas, Athan was sick. Upper respiratory junk, yucky cough, fever off and on for days... We went to see Dr. Coburn, got some antibiotics, and he got better. Doing great now...

Over all, he's been healthy lately. His sleep patterns... well, there is no pattern. Sometimes he'll wake up in the middle of the night every night in a week, sometimes screaming, sometimes groggy but fidgety, and sometimes alert and playful. Then he'll go a week or so sleeping through the night. We never know. He eats well, and we've been able to keep him from being constipated just by being careful with his diet. He also helps keep things moving because he's just moving more himself...

Seriously, you'll be shocked. When I can catch some good video of him walking, I'll post it. OH MY! As has been confirmed by several people (including and most importantly Laurie, the world's greatest PT), he's walking 50-75% of the time now. Closer to 75%. I'm so proud of him! It was later than with Morgan, but Athan's toddler "I-can-do-it-myself" thing finally kicked in full-force, which has helped in lots of areas, including mobility. Ok, I'll just stop trying to describe it and try to catch a video so you can see...

We've been making calls and gathering med records. I have a stack 10 inches tall of paperwork to copy, sort, and file in preparation for starting with new docs after the move.

We also had an ARC meeting with the schools, and officially have and IEP in hand to take to Abilene schools to get started with therapies for Athan after the move. Such a relief to have that done.

I think that covers it for now. The next few weeks just hold some "last visits" with some really special people who have loved and served our family and our boy so well. I'll let you know how we survive those... :)

I hope he forgives me for this...

2010-05-30T12:05:00.002-04:00

My brother graduated! I'm so very proud of Jer (and loving the new shiny top he's sporting these days). He is now and RN. I made the trip to Clovis a couple of weeks ago for his graduation. Yeah, he's kind of a big deal...
I'm also very thankful to RYAN especially, as well as my kids, Eve Jagger, Guess-ca (that would be our neighbor, Jessica, in Athan-ish), Caroline, Ashely, and undoubtedly others who jumped through hoops to help me be gone for 4 days during the week at the end of a semester right before we move. I got to see Jer graduate, hug lots of parents and grandparents and aunts and uncles I've been missing, and spend some time with great friends. It was as much a gift to me as it was to Jer. THANKS all! :)

my ballerina...

2010-05-29T20:46:00.004-04:00

Grammy gave Morgan some money for Christmas for ballet lessons. She LOVED it. Wilmore School of Christian Ballet was wonderful for us. We are so thankful for the experience. Here's a glimpse of her weekly sessions:

The next video is the Spring Performance for the school. They performed a ballet of The Parable of the Sower and the Seed. Morgan is a seed. :) She and her partner come out and do the seed dance, then they "go to sleep" as if planted. Then come "the thorns, which grew up with them and choked the plants" (that's the other group of girls dancing). After her part we skip ahead to the final bow...

She had fun. Can you tell? :) Truly, though, after all was said and done, her favorite part of it all came before the dress rehearsal and the performance: putting on make-up!
And I still think her favorite place to perform is in our spare room for her daddy (we have 7+ minutes of nonstop dancing on our camera - I cut it down to 3 for you):

the short version

2010-05-29T09:18:00.002-04:00

Ok, I've been avoiding the blog. There's just SO MUCH that's been going on, and I want to tell you ALL about it. And I will. It's just going to take some time. For now, here's a list version, and I'll flesh out details in the next few posts:

- Morgan was the most lovely ballerina ever in her spring performance (video coming, promise)
- I went to Clovis for Jer's graduation from Nursing School (YEAH Brother!)
- Athan got sick (upper-respiratory junk), got meds, and got better
- Ryan won an award, spoke at graduates chapel, and graduated from seminary
- Morgan is finishing pre-school in 4 more days
- I got to go to Cincinnatti yesterday with my friend, Erin. The ache of leaving here creeps in
- ATHAN TURNS 3 TODAY (but don't tell him - he insists he wants to be 2 still)
- Ryan packed all of our books - we're really moving soon (not till end of June, but still...)

Ok, LOTS of stories to tell, videos and pictures to upload and edit, detials to fill in... I'm on it!

back to the dark ages

2010-05-05T19:30:00.002-04:00

Flooding of the Kentucky river means our internet at the house is down until the river is down. Sorry for the lack of posts, e-mails, etc. Maybe I'll actually get some packing done...

A Spring Walk in Wilmore

2010-05-01T17:28:00.002-04:00

I packed the first box

2010-04-24T20:13:00.002-04:00

And then cried for a while. Gulp...

This is going to be really a really good and really tough transition...

We've started gathering Athan's medical records, and researching doctors in Abilene and Lubbock. We started the process of getting therapies and such going after the move.

We've started talking to Morgan about moving to Texas. So far she's excited.

So, momentum for the move is picking up.... :)

Now that it's officially official...

2010-04-20T08:13:00.001-04:00

We're moving to Abilene to be part of Elmwood West UMC. :)

steadily onward...

2010-04-13T08:56:00.002-04:00

Athan keeps doing new things almost daily right now: taking more initiative to walk on his own. walking longer distances with us holding just one hand, walking alone and changing direction without sitting or holding on to anything... Just keeps plugging ahead at Athan's pace.

Morgan also seems to have new skills every day: new words she can read, new chores she takes on, new expressions of creativity...

That explains what I do most days. :) But I'm also reading lots, and starting to pack.

Ryan's doing school, gardening, and working on a couple of woodworking projects here and there.

Just doing what we do and watching Kentucky bloom. Good days...

let this be a holy moment now

2010-04-05T11:57:00.003-04:00

Athan and Morgan were baptized yesterday.

Christ is risen! Hallelujah!

Morgan ballet

2010-03-27T13:33:00.002-04:00

This one is a glimpse of Morgan during the instruction time. She mostly follows directions, but almost always adds her own little twist to all of it...

And this one is the "free dance" at the end of the lesson, which Morgan apparently interprets as "track practice," and runs laps with a flailing hankie.

most ever!!

2010-03-26T18:46:00.002-04:00

What you're watching is the most steps and distance Athan's ever done unassisted. This was actually the third time he did it during therapy earlier today. He went about 6 feet. Yeah! :)

therapy update

2010-03-23T13:07:00.002-04:00

PT and OT continue to go really well for Athan. He has his up and down days, but he maintains steady forward progress at Athan's pace. He has ventured a few more unassisted steps here and there, and keeps improving his strength and balance all the time. He LOVES going in to Ms. Emily's gym twice a month.

He still uses his walker pretty effectively, so we're going to call and ask Shriner's if we can hang on to that until we move. We'll decide in June if we need to try to buy/borrow one for him once we're back in Texas.

We're also waiting to hear from the school so we can have meetings and get his IEP done before school is out. That way when we move we can have a starting place at the school, if we decide to go that route.

We just keep on cheering - Go, Athan, go! :)

oh, AND...

2010-03-15T20:56:00.004-04:00

The other part of now-standard protocol around here is to knock on a friend's door in the middle of the night to keep Morgan. This time it was Jeremy and Jessica. It's been Adam and Dru, Jason and Hannah, Rob and Kat, Alan and Sarah, and on and on...

I'm not sure where we're moving next, but where ever we end up, I'll be scouting friendly faces for the person least likely to hate us if we have to wake them suddenly at 4 a.m.

To the many who have helped and the rest who have offered, we couldn't say how thankful we are...

The new info

2010-03-15T18:01:00.002-04:00

Intussusception. That's what it's called. Probably what happened to Athan is that part of his bowel telescoped into another part.

Ouch.

As far as we know, there's no connection between this and his other issues. It can happen to anyone, and is more common in children under 5 or 6 years old, more common in boys. If left untreated over time, part of the bowel can actually die and have to be removed surgically.

Good news - not likely to happen again. Rarely happens twice, and if it does repeat, it is VERY VERY unlikely that it would happen a 3rd time. What I mean is that we're not looking at a chronic problem, most likely. Right now, no need to add another specialist to his list or anything. We will, of course, be extra-observant of his diet and diapers, in case there are signs of it again.

after the ER

2010-03-15T17:37:00.002-04:00

Life after the ER is becoming unfortunately standard protocol around here. There are some things that seem to be part of it every time: There's the hurt - hurting to see your baby hurt. There is sleep deprivation, changing plans, canceling on commitments, tag-teaming naps for a couple of days, and trying to be nice to each other when it all makes us grouchy. We have to stress dose for a while, and keep track of stepping back down to normal doses. There's assimilation of new information (more on this later), and renewed sense of relief and thankfulness for having been carried through another round of trauma with/for Athan.

In the midst of all that, each new emergency has it's unique set of recovery experiences. This time had a few:
1 - The Clown. As I reported in the last post, Morgan's school put on a circus for parents to see, and she was a clown. I attended said circus after only a 2 hour nap on an ER bed with a toddler in pain. Honestly, I think the circus was funnier because it was all kinda fuzzy...
2 - The Poo. Athan had an enema. To save him the discomfort of prolonging the "tube up his butt" part, they only partially drained the fluid. The rest of the poop-water came in waves after we got home. Those "waves" would instantly over-flow the diaper every time. Lots of laundry (and a special trip to Nicholasville to get more detergent). Lots of scrubbing. Lots of baths. And we're going to try to re-cover one of our chairs (and maybe just drag it to the curb on trash day if we fail).

3 - The Time Change. Ugh. I hate the "spring forward" bit anyway, but 2 days after an ER trip?! Ugh, I say.

Really, after the ER, we're fine. Tired. A bit grouchy. But fine. Athan is downright chipper today. :)

meanwhile, at the circus...

2010-03-12T11:21:00.003-05:00

I got a reasonable nap at the hospital, so I requested that Ryan take the first sleep shift at home. I went up to Morgan's school while the boys slept to see Morgan be a clown. Too cute! She ran around with the other clowns bopping people with balloons, and then squirting them with silly string and water.

Also, last Friday was clown day at school. The good pics are of her costume LAST Friday, and the fuzzier ones are from today, when silly mom forgot the real camera and had to use her phone to take pics. :)

home and resting

2010-03-12T11:14:00.002-05:00

Athan slept through the entire discharge process (including removal of the IV), through being buckled into the carseat, all the way home, and in bed with Ryan until I got nervous and woke him up few minutes ago to have him eat a little and take medicine. He seems fine. Just sleepy.

correction :)

2010-03-12T05:53:00.002-05:00

Given how well his procedure went, they gave us the option of admitting for observation or going home.

We're going home. :) We feel confident that we can monitor what we need to, and he'll rest better at home.

Hopefully we'll be discharged soon. I'll post whenever we're awake today.

enema done

2010-03-12T05:41:00.003-05:00

They used a water soluble solution instead of barium, and it apparently went as well as enemas can go. No fun, but it's over. Kid you not, when we left Athan said "thank you" to the radiologist.

He said the enema either fixed it, or it had reduced on its own before we even started. Either way, it's fixed.

We're still in the ER for now, but we will admit to the pediatric floor for observation.

resting after getting IV

2010-03-12T04:46:00.002-05:00

we are in the UK ER again

2010-03-12T04:04:00.002-05:00

Not blood sugar this time.

At 11p, after being asleep for a couple hours, Athan woke up crying. Not unusual. But he didn't stop, it was very intense, and he was writhing in pain - pulling on his shirt, drawing his knees up to his chest, and saying "owie, owie, owie." It was obvious he was having abdominal pain, but no other symptoms - no vomiting, etc.

After nearly a half hour of this, we were nervous. It was abnormal enough behavior for Athan that we decided he needed to see a doctor right away.

Our gracious neighbors Jeremy and Jessica are at the house with Morgan, and we brought Athan into the ER.

X-ray was normal, blood work was normal, but ultrasound showed that part of his bowl is either looped around or telescoped into another part. It's fixable with a barium enema, which will likely happen in the next few hours.

Once again, we ask for your prayers, loved ones.

on the way to bed tonight

2010-03-01T20:35:00.002-05:00

Morgan exclaims "I want a piggy back ride!"

Athan, not to be left out, cries "Mama, I ride backy pig!"

Dr. Irene says...

2010-02-22T22:04:00.002-05:00

1 - Increase his nighttime dose of Cortef.
2 - Incorporate a higher fat, high protein snack before bed.
3 - Possibly increase his growth hormone dose as well.

We'll probably be doing more sugar-checks for a while. She says they recommend diabetics go to bed with a blood sugar of 100 to make sure there's room for a drop over night without being dangerous. Not sure if Athan needs to be exactly that, but we'll get a better idea of how his body does over night while we monitor his sugar more closely for a bit.

So, more sticks. Yuk.

Athan, aside from disliking the sugar checks, is fine. No worse for wear, it seems, from the episode last week.

And Mom and Dad are better. Fear still barks at me occasionally, but I'm asking again for the Lord to teach me to live a life of Love, not Fear.

another scary blood sugar dive

2010-02-18T20:03:00.003-05:00

Yesterday morning Athan woke up a little whimpery. That's it. But I knew something wasn't ok. I checked his sugar - 28. Then 30. I checked mine to make sure the meter wasn't broken - mine was 95. (normal is 70-120). Ryan gave his emergency shot, and we poured peach nectar down him. And we waited. 10 min later, 38. 10 more minutes - 172. Whew....

And since then, he's been fine. Not sick, eating well... He's fine. We talked to Dr. Irene's office,a and have followed instructions on stepping down his dosage back to normal Cortef dose today. Checking his sugars regularly, etc... (95 at last stick this afternoon).

He's fine. I'm not. I'm afraid. His blood sugar can get really, REALLY low with no warning signs and almost no indicators. May it was even just stress that caused him to tank. I don't know. We don't know.

It's been a while since I've felt fear like this about my Athan.

Anyway, we see Endo on Monday, and maybe we'll know more then.

By a better photographer:

2010-02-08T21:32:00.002-05:00

Here are a few glimpses Wilmore in winter time. I'm gonna miss it here.

travel

2010-02-06T21:09:00.003-05:00

We made it to Chicago and back last weekend. Oddly enough we drove far enough north to miss all the snow that hit Kentucky and south while we were gone. It was COLD though. I think it got all the way up to 20 degrees about the time we were leaving town....

We got to visit our friends Josh and Candace McCallister, and their wonderful kiddos Jedidiah and Lilia. We got to stay in the guest apartment at Reba Place - so nice. Morgan and Jedi played together really well (until that inevitable point in preschool-dom when sharing becomes unthinkable). Poor Lilia got a little sickly while we were there, but Athan Bear held out and made it home with no sniffles or fever or cough. I was a bit nervous about getting the Bear out that much in winter. He's been so healthy this season, and looks like the trip didn't change that at all. Yeah! :) Ryan and I got to spend not-nearly-enough-but-good time with our dear friends. It may be the last time for a while, as it is slightly more difficult to pop up to Chicago for a weekend when you live in Texas. Sigh...

Then, on the way home, we stopped at the Children's Museum in Cincinnati. Wow. So fun. All interactive learning activities for the kids to play with. We really had fun. Morgan, of course, met new friends around every corner, then proceeded to enjoy whichever attraction with said new friend. Athan was a real champ. He drug his little walker all over that museum. He stood for almost an hour and played in the water. He crawled and climbed and smiled until, of course, the last 10 minutes, when he melted down into the most literal kicking-and-screaming fit either of my children have ever managed. But before you judge, just look how tired he was:

Yes, that's lunch lingering in his hand. Morgan was zonked, too:

yes, really...

2010-01-28T22:29:00.006-05:00

Tonight, I learned to knit! After I did this much I just took it apart and gave the supplies back to my gracious teacher, Sarah. But it was out on a limb for me to even try. :) Who knows - maybe there are home-made scarves from me in your future... :)

I don't do this much

2010-01-27T21:14:00.002-05:00

But in echo of my friend Sarah's blog post, check out this thoughtful post on differently-abled persons. Then watch the video.

fun family randomness

2010-01-27T13:52:00.003-05:00

Ryan is taking a Mentored Ministry class this semester. As the title indicates, it is a class for being mentored by those already in ministry. Ryan gets to work with Sean at Communality in Lexington, and the kids and I will be attending several of the events there with him. It will be fun to learn from them and worship with them this spring.

Amberly now uses this site for printing a weekly organizer. It's free, recyclable, and pocket-size. Plus, each week I get to pick a new cover (using the "image" option). This week: luggage, since we're traveling this weekend. :)

Morgan's response to Athan's first steps (forgot to post this with the other video):

Athan has transformed the act of cuddling into an athletic event. Almost nightly, he crawls in bed with us, and proceeds to try to be in constant contact with both Mom and Dad at all times. The closer the better, especially if we can be cheek-to-cheek. It's much cuter now, as a fun kid story in the daylight, than it is at 4 a.m.

another Morgan moment

2010-01-20T22:10:00.002-05:00

"Mom, Athan and I are a band! We're called the Significant Singers!"

Yes, really, she said "significant."

among the favorite activities of late: letters

2010-01-19T23:11:00.002-05:00

The story about the above pic goes like this: When I came into the bathroom, Morgan spoke with great urgency. "Mom, don't worry. I know "cat" is wrong, but we don't have a letter C any more because Athan bit it and it broke, so I used a K because it makes the same sound and we don't have a C any more and I put it backwards because it is the wrong one anyway. Ok, Mom? Don't worry."
"Ok, Morgan. No problem. Not worried. Good spelling."
"Thanks."

The bottom one started out to be "Mom" and ended up being "Mooooo." Not sure what I think about that.

frozen!

2010-01-18T11:29:00.004-05:00

The temp stayed below freezing for almost 2 solid weeks around here. It's nothing compared to the ice storm of last year, but still SUPER cold. It's funny that "sunny and in the lower 40s" feels balmy after 2 weeks of teens and 20s. The kids and Blue enjoyed the winter-y weather just fine, I think:

Morgan's 5th

2010-01-17T23:31:00.001-05:00

Morgan turned five back in December. Ryan and I took cupcakes up to school for a little party with her class, and Ryan took her in to Lex to see the Nutcracker ballet. She got to go backstage afterward and meet all the ballerinas, then eat dinner with Dad on the way home. She really understood the story, Ryan said, and recounted most of it to me when she got home. I can hardly believe my beautiful girl is 5! :) Just wanted to post a couple pics for you all...

my temp job, etc.

2010-01-17T23:17:00.002-05:00

Prepare to laugh - I'm working some shifts at the Phone-a-thon for the seminary. I know, I know - not my life's calling! But it has been surprisingly good. We call alumni, spouses, and friends to first pray, then update them on seminary news, and give them a chance to pledge to the general scholarship fund if they want to. I don't have to beg anyone for money (which I'm terrible at doing), and I do get to pray with folks (which I really like). So... ok, go ahead and laugh at me now. :) It'll be nice to get a pay check for a change, even if it's only for 30 hours or so.

Morgan's back in school and still liking it, it seems. Our girl is ever-more creative lately, and it's fun to watch her learn to read. Her big new addition this semester is ballet lessons - a Christmas gift from Grammy. She LOVES it. Her first session was too funny! She had been placed in the wrong class, and she was the only beginner in there. Oh my. She looked like the Rogue Ballerina. 3 other little girls following instructions and standing in "first position" as Morgan spins and then falls down over and over. She has now been moved to the appropriate class so she can spin and fall with 5 or 6 other newbies. Way fun. She says "I'm a ballerina, Mom. A REAL one."

Athan's still being our Athan. A little volatile these days, as 2 year olds will be, but still pretty pleasant kiddo most of the time. He has taken a few more steps here and there, but he's not too interested in trying for more than that. As with the rest of his skills, it'll have to be on his terms when he decides to go ahead and walk more. He IS showing much more initiative in using his walker these days, so his legs are getting more and more strength and coordination. He can identify most of the alphabet on sight, and is learning the sounds, too. He talks alot, and more and more clearly, too.

Ryan is with the kids alot while I work my phone-a-thon shifts, and is using the break to read the books he wants to read! He's also finishing up lots of work for the ordination process, and working on the ever-present to-do list of around-the-house projects (the bathroom is almost finished!).

per request... :)

2010-01-08T18:24:00.000-05:00

Modes of Transportation 1/7/10 from Ryan Strebeck on Vimeo.

one five ten

2010-01-06T00:58:00.002-05:00

On January 5, 2010, with both parents and dear friends looking on, Athan took his first totally unassisted steps. 4 of them.

Details and hopefully video to follow.

He walked!!

un-busy

2009-12-22T14:49:00.002-05:00

Whew. This is nice. :)

Morgan and Ryan are finished with school for the semester. All the programs and parties are over. Now we just rest and wait.

And one of the things I'm looking forward to doing is updating you all via this too-long-latent blog. :) I'll get some fun posts and Athan updates going soon.

busy

2009-12-13T21:49:00.002-05:00

Truly, we try to structure our lives so we use the word "busy" very,very little. However, this weekend, we were busy! I'm worn out, but at least this only happens a couple of times a year. :0) The past few days went something like this:

Thursday - early PT appointment in the afternoon and Morgan's school program that evening.
Friday - spent all day getting ready for the Canadian Missions committee to come see the house, then dinner with Canadian visitors and the people they help support at seminary.
Saturday - cooked all morning for a party Sat. evening, took Morgan to a birthday party for Maddie in Lex, then hosted a Send-Off Party for 3 families who will move in the next few weeks.
Sunday - Morgan's birthday! :) We had pancakes for breakfast, then church, then lunch, then Dad took Morgan to see The Nutcracker (pics to follow), meanwhile I went to a girl's farewell dinner for a friend moving this week. This evening Morgan opened gifts, ate cake, and watched a movie.

I suppose that list is unimpressive to some, but for us, that is extraordinarily hectic. :) Maybe I'm a wimp. It was all very fun stuff, and I'm glad we can resume a reasonable pace now, too. :)

This week Ryan will finish up the semester, we will load a moving truck and cry, and we'll begin life without Rob and Kat next door, with a 5-year-old in the house, and with one last semester of seminary ahead of us.

beginning of the transition

2009-12-04T22:13:00.002-05:00

Well, we don't actually move for over 6 months, but the process has started. At least as far as Athan's doctors are concerned....

This week we saw 3 of Athan's doctors. Dr. Irene checked his endo stuff, and all is well. No change. Dr. Coburn did a 6-month check-up, and again - all is well.

And we saw Dr. Bay. She is the Geneticist we see only once a year. Yes, again, all is well. It was our last visit with Dr. Bay. She is sending us copies of Athan's file with genetics in preparation for the move, as well as sending us contact info for geneticists nearer to west Texas. It's our very first "last" anything before we move. You may get tired of "lasts" posts over the next few months, but I suppose there may be a few anyway. We're thankful to Dr. Bay and her staff for helping us smooth the transition out of the Bluegrass back to the High Plains.

the haircut

2009-11-28T16:20:00.004-05:00

Some of you will be disappointed by this, others unspeakably relieved. Either way, here it is. Before and after of Athan's first haircut:

Thursday 4p:

Friday 8a:

Thanksgiving in Wilmore '09

2009-11-28T10:12:00.003-05:00

breakfast with visiting friends

2009-11-22T22:47:00.001-05:00

Just a few fun pics of breakfast this morning with some friends.

my gesture of solidarity

2009-11-20T10:42:00.004-05:00

There is not much about Athan's experience that I can voluntarily adopt, but this one I can. Athan has been reluctant to keep his glasses on for long stretches, but we've discovered that he will keep glasses on his face if I have glasses on mine. SO.... I got "glasses." After a short trial run with some borrowed frames, I realized that the tactic worked and I needed something more permanent. I don't need any prescription, so reading glasses were out, as was borrowing Ryan's glasses (headache!). I eliminated the $$$$ options immediately, and finally found some $10 kids frames at the Vision Center in Wal-Mart. I just left in the plastic demo lenses. If I ever actually need glasses, I probably won't choose purple again! But for now, and for $10, and to help Athan, here's where I landed. And so far this morning, he hasn't taken his glasses off yet. :) I'm willing to look THAT dorky for a bit until he doesn't need it anymore. Ah, parenting - sucks the cool right out of you...

Yes, I was cooler once.

Was too!!

Shut up.

a query for my fellow parents:

2009-11-17T19:38:00.001-05:00

Why does Athan only poop in the tub on tuesday nights - the only night of the week Ryan has class and it's just me here with the kids?

3 of 4 of us are leaking

2009-11-11T08:38:00.002-05:00

Morgan, Athan, and I have colds. Nothing severe yet, but just the general drippy, coughy yuckiness.

Morgan has had the worst of it so far, running a fever of about 103 in the morning yesterday. It dropped back to about 99, then spiked up to 102 again after dinner. She missed school yesterday and today, but she's pretty perky already this morning. No fever, and not much cough, so maybe she's on the up-swing.

Athan and I haven't had a fever or anything. Just lots of snot. And then cough. Not so bad for me - I think I'll be over it soon. Athan, on the other hand, has always had a difficult time coughing effectively enough to clear everything out before it gets infected. So far so good, but we could use your prayers that he can fight it off before it gets worse.

(just a quick p.s.: We had our first adventure of being pet owners last night. Blue got outside the fence, and Ryan chased him for an hour or so. Then I took a turn. No luck. So we dejectedly gave up chase while we got the kids ready for and into bed. After about 3 hours of running his legs of, he apparently decided that this is, indeed, his home. So he came back. We didn't know if he'd do that or not, so we're super happy to have Blue back today. :)

a better walker video ('bout 3.5 min)

2009-11-07T11:54:00.002-05:00

unprompted and unaided!! woo-hoo!! :)

2009-11-06T10:23:00.003-05:00

Anyone else teary?! Kiddo just randomly volunteered himself to grab his "new toy" (his name for the walker), and take off. With minimal assistance he walked out of the kitchen, through the living room, and down the hall. Yeah Athan!! I'm walking around singing the doxology for some reason... :)

introducing...

2009-11-05T17:46:00.003-05:00

Our new pooch. This sweet little guy was rescued by our friends Kelly and Tony this weekend as he was running for his life from all the traffic on the Bluegrass Parkway. Hence his name: Bluegrass (Blue for short). Morgan is so excited we can hardly keep her in the house at all. :) Athan is... warming up. I might be s happy as Morgan is about having a dog. Ryan is talking of building the dog a house, which I'm taking to be a gesture of welcome.

The Ballerina and Bob the Builder

2009-11-02T16:24:00.003-05:00

Until just a few days ago, Morgan wanted to be Darby again. She changed her mind last minute and went with Ballerina instead. Good for us that Nana stocked the dress-up drawer with ballet clothes. ;) Athan, happy to just be a part of it all, let me zip him into a Bob the Builder constume I got at a consignment sale for a couple bucks.

ALL of this cuteness was gathered at our house before we walked over to Wilmore's wonderful Treats on Main event:

The ballerina gave us some live action before wearing the costume to school Friday:

And later that evening, built a huge pile of leaves, then plopped down in them an made a "leaf angel":

Eye Patch

2009-10-28T11:04:00.002-04:00

Our first assignment from the ophthalmologist: get Athan to wear his glasses. The second: begin "patching" his good eye every day. The former is going well so far. Slowly, but surely, Athan is wearing his glasses - especially when reading. The latter challenge will begin next week, so we will keep you posted on that. For now, if you would like to read more about the method of patching we have been asked to follow, you may go here.

Here is the gist of the treatment, courtesy of the National Eye Institute: "The atropine eye drop works by temporarily blurring vision in the unaffected eye, thereby forcing the eye with amblyopia to be used. This strengthens it and improves vision."

We know this will be tough for a while, but the payoff should be good in the long run. Any volunteers to come hold down the stronger-by-the-day bear cub for an eye drop? Yikes!