Tuesday, August 24, 2010

1st day of school

Ok, it's official. Yesterday was Morgan's first day of Kindergarten, and today Athan started preschool. Morgan's is a full day thing (8-3), and Athan goes for 2 hours each morning. More details to follow, I'm sure. But for now, that's all I can manage. It's a bittersweet day for me. I'm gonna go distract myself for 45 more minutes, then pick up Ryan and go with him to get Athan!

Monday, August 16, 2010

no puking, still fever, still home

He hasn't thrown up any more since about 9 last night. He still has a mild fever, but he's eating a bit and has kept his meds down. If the banana he's eating sits well with him, we'll give some Tylenol in a bit for the aches and the fever.

Doing better but not out of the woods yet. Thanks for praying! We slept in shifts around here, so today might be a long one for all of us... :)

Sunday, August 15, 2010

still at home, still sick

We thought we were in the clear. He slept alot, sugars stayed high (88 was lowest), and then acted like he felt better and ate a little finally.

Then he threw up all over Grammy and the couch (again). So he's back in the tub, we're running the 25th load of laundry, and Grammy took her 3rd shower of the day.

On the bright side, he still acts like he feels better. He's talking and playing a little...

Ok - mid-post correction: Just checked his sugar. 70. Not dangerous yet, but it needs to go up.

1st time sick in Abilene

Athan's been awake most of last night and today. He's been throwing up since about 9a. So far his sugars are fine (nothing below 90), but if he can't keep something down soon, including and especially his Cortef, we'll have to give his emergency shot. If that doesn't work, we'll have to go to the hospital.

We could use your prayers once again.

Tuesday, August 10, 2010

yes, better

And thank you all. I appreciate the encouragement. Alot.

Today was better. I'm still sifting through all the stuff, but I took a big break from cerebral work today and cleaned up in our backyard for 7 hours today. I'm physically worn out, but less stressed.

And I'm a bit embarrassed for whining. I should never blog when I'm sleepy - it comes out pitiful.

So.... tomorrow I register Morgan for Kindergarten. Wow!

Monday, August 9, 2010


Today I am overwhelmed. (It looks like a small, benign sentence).

I've fallen off posting for a while, and I'm sorry 'bout that. I'll soon return to the regularly scheduled cute-kid stories and pictures and videos.

But today, I have to post a little of Athan's Journey. Or maybe Athan's Mama's Journey. ;)

Endo. Cardio. Optho. Ortho. Genetics. PT. OT. School. Pediatrician.... It's alot to coordinate. Everybody has to learn the Story of Athan. So I've been combing records, sorting, filing, copying, organizing, reading...

And crying. It's hard reading - Athan's medical history. I kept up, during the last 3 years, whatever information we needed to know to care for Athan THAT day. Until the last couple of days. I'm trying to learn the comprehensive whole of his story, so I can tell it (and document it) correctly for the new folks who'll be providing care. There is no short version. There is no easy telling. I have alot to learn...

So coordinating the appointments could be a full time job - schedules and records and paperwork and insurance and such. I feel like I should go to med school to understand Athan's story, but even if I just try to decipher the pile of papers from Central Records at UK, I'll spend some hours there. Meanwhile, we just moved in. Nothing feels like it's where it should be yet. And my kids still get hungry and lonely and bored and tired. The damn dog keeps pooping and not cleaning up after himself....

I told Ryan today: "It really is all stuff I WANT to do (maybe except cleaning up dog poop), but today I'm overwhelmed by how much of it needs to be done yesterday."

So that's Athan's journey today - Mom's overwhelmed...