She asked about his "crash" back in December. It was reassuring to hear from her that we did the right things in caring for him during that episode. She gave a few ideas of new things to try if he gets sick again. Next time, we will give the IM dose of his SoluCortef (emergency shot of his daily med) earlier and see if it helps him rebound without having to be hospitalized.
She is very pleased with his development in every area except two. Surprise, surprise: weight gain and gross motor skills. She is going to increase his dose of growth hormone a bit and see if it helps him gain weight. And as always, we're working on his physical therapy all the time to help his mobility and large motor skills catch up.
She said there is nothing obvious from and endo standpoint that would help us explain his inconsistent sleep, so it remains a puzzle.
I really wish you all could meet Dr. Irene. She has been so good to us from the very beginning - holding my hand as she explained his diagnosis of panhypopit in NICU. She is always so warm and helpful. We are grateful to have her caring for our boy. We get to go visit her again in May.
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