We're just home! It is so nice to just be doing relatively normal baby things at home - changing diapers (he is definitely getting enough to eat), treating diaper rash, not sleeping in very long stretches, helping Morgan adjust...
We're also doing the unique things that our boy will need - like figuring out a safe place to keep all of his meds together and away from Morgan, deciding where to keep our "sharps" bucket (for his used needles), and establishing a good routine at each feeding to crush pills and fill syringes.
Athan is doing well. For mom's peace of mind we checked his sugar today, and it was WAY good (110 for those of you who will care about the numbers). He is getting better and better at taking his meds - even phenobarb goes down pretty easily these days. In a few hours we will give his daily shot for the first time at home.
Morgan has had her ups and downs today. She seems to be mad at mom and dad some, but not at Athan. She did really well this morning - she was so very sweet to us all. This afternoon she seems a little tired of the new routines. But right now she is going to the grocery store with Dad, which should be a nice treat.
Grammy Tammy is here for a few more days, so we are leaning on her to help us get some things done. The plan was to be in New Mexico by now, so our house was ready for us to move out for the summer. Now that we've moved back IN for the summer, I've gotta find our stuff! :)
3 comments:
Athan, I cannot wait to hold you.Give my LOVE to Gramy Tammy.HI Morgan,Amber,and Ryan. I guess we should start calling ya'll SUPER MOM and SUPERDAD!!!! Oh almost forgot SUPERSISTER!!! I am so proud of all of you!!! I look forward to seeing you soon.GOD BLESS YOU!!! LOVE, TIM (little timmy)
Ahhh!!! I loved reading that you all were home!! Precious Morgan...should definitely get the sister of the year award! It has really been neat to read about this journey even though I had tears of my own just reading it. It is so hard to watch a little one go through all of that and your courage and upbeat posts were just heart warming. Jackson and Athan will have to trade head IV stories. Our favorite nurse called it his party hat and even made it look like one too. Nurses sure do help make things easier when everything is going on.
Our love and continued prayers to all four of you!
Cole, Rachel, and Jackson
I am sooooo glad ya'll are in the comforts of your own home!!! Ya'll deserve the super family of the year award. Tell Grammy Tammy hi for me and ya'll are definitly in my prayers. Love to all. Andria
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