sorry so slow!

Faithful family and friends: I'm sorry we're slow updating today. We had a super busy morning, but almost none of it had to do with Athan. He is good (details to follow). Mom and Dad are a little ragged today. Ryan's sore throat became all-out sick today. He called a doc, and has spent the morning getting a prescription called in near here and is out picking it up right now. Pray for him - he can't go in to see Athan until his meds kick in (probably 24 or 48 hours). So all the taking care of Athan is on Mom (and great nurses and docs!) for a while. I'm also short on sleep - we couldn't find the breast pumps at Ronald McDonald House last night, so I had to come back up to the hospital at about 5 this morning. The upside - I only missed one feeding, so Athan is getting more practice nursing!

About Athan: He had a good night last night again, and continues today to improve each time I feed him. Also, his IV port got to come out today! :) That will help us have more range of motion when he's nursing, in addition to not hurting him any more.

They didn't change much this morning on rounds. The biggest updates will still come from neurology and endocrinology. Neuro seems to be in a "wait-and-see" mode. They want to keep him on the anti-seizure med until they know more about his EEG, so probably nothing will change until they can repeat and evaluate the test again. They keep saying the abnormalities are not actual seizure activity, but they don't know what it is, either.

The endo doc (Dr. Irene) came by this a.m. She has seen the MRI results that showed his pituitary gland, and it basically confirmed her course of action with Athan. She's having them wean the med for his adrenal gland to see how low of a does he'll need. Tests are ordered for tomorrow to see how his thyroid is responding to the medication he's on. She also is going to order some more tests to check levels of 2 other hormones controlled by the pituitary. So here also we are just doing more tests and waiting on results.

And because some of you have asked - his glandular insufficiencies are rooted in his genetics. Basically, that just means it was not some event that caused all of this, but rather he was born with things that caused the subsequent events. I hope that makes sense...

Ok, I'm off to change a diaper and feed our beautiful boy.